DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group.
Our vision:
We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.
DEBRA focuses its work in two areas:
- We fund pioneering research to find effective treatments and, ultimately, a cure for EB.
- We provide care and support to improve the quality of life for individuals and families living with EB.
Volunteering
Every day, DEBRA volunteers across the UK have fun developing their skills and experience. We'd love you to sign up to be a volunteer!
Whatever your reasons, our wide range of volunteering opportunities and flexible approach mean that you decide exactly how and where you give your time. For more information on current DEBRA volunteering opportunities contact us.
